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Wednesday, February 1, 2012

MySentry Update and ENDO Appointment

We have been using the MySentry for about a week and a half now and we are LOVING it.  It has been a little bit of an adjustment for me. I was use to her wearing the wireless microphone in her pump pack and being able to hear everything she did.  Now it is just silence and a number.  It is a welcome change, but it did take me a few days to really start to trust that it would work.  The first few nights and even mornings I would walk down there and think, I know what her number is so what am I doing here?  I guess old habits are hard to break.
The only problem we were having was it losing signal in the night.  We had the outpost about 5-6 feet away from her bed.  But several times during the first few nights it would lose data and alarm!  It was getting very frustrating.  Our rep suggested that we move it even closer, possibly putting the outpost on an extension cord and moving it as close as we could, safely, to her.  Right now we have an extension cord that is tied to her bedpost so it is literally 2-3 feet from her.  (It is up high enough and tied tight enough that it is not a danger to her while she sleeps.)   Since doing this is it working perfectly!  At night if she beeps high, low, weak signal anything, I am alerted.  No more rushing to her bed and realizing I have let her pump alarm for hour(s).   I think my hubby is also enjoying it.  He usually does not get up with her at night, but he likes know what is going on with her, and this lets him know if she is high or low.  Do I sleep more with the MySentry, maybe.  Mysentry only helps me hear the alarms, it really does nothing to manage her diabetes.  I will say that when I am sleeping I feel better knowing that I will hear those alarms. 

Today, I gave the endo the last of the paper work I needed her to fill out for us and hopefully we will have it in a few days and then mail everything off to insurance.  I have never filed a claim with them before so I don't know what to expect.  I am hoping it is a quick process, for anyone that knows me, knows I am not a patient person  :)  Plus I really would like this done ASAP as we are switching insurance companies on the first of March. 


Today was Brianna's 3 month follow up appointment at the endo's office.  Sometimes I wish these follow-up appointments would have an end date in sight, but until there is a cure, every 3 months we go.
Her appointment went really well.  Her last A1C was 5.2 and this time is was 5.5.  So overall a good number.  We made a few basal changes at night but other then that left everything alone.  Our goal for next time is that she does QUICKER fingersticks at school.  She is soooo slow!  I think she gets caught up in everything that is going on in the clinic but she needs to move it in and out!!

I will say about her A1C I know several people last time expressed concern about it being too low.  Trust me in saying that I never purposefully run her low to get a good number.  I work really hard to get that number.  (Also not saying if yours is high you don't work hard, I know diabetes is not a fair disease.) I really think the CGM is one of the most important things in her diabetes care.  Knowing where her numbers are going is so important.  Those arrows, oh those arrows, as much as I hate seeing them in either direction, the information they tell is VERY important. 

I am going to try to start blogging more frequently.  It really helps me get my thoughts out.  I hope that others will understand more about diabetes and those that are living with diabetes will know they are not alone.

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